Last updated on 29-3-2023 by Brecht Devleesschauwer Health and disease monitoring Peer reviewed scientific article English SCIENSANO AuthorsPavel Kolkhir; Diana Alecsandra Grad; Periklis Charalampous; Claudia Cruz Oliveira; Enkeleint A Mechili; Brigid Unim; David A Pearce; Marcus Maurer; Brecht Devleesschauwer; Juanita Haagsma KeywordsAdvisory Committees European Union Humans Rare diseases Article written during project(s) : burden-eu European Burden of Disease Network Associated health topics: Burden of disease Rare diseases