%0 Generic %D 2019 %T Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together %A Richard Roxburgh %A Miriam Rodrigues %A Victoria Hodgkinson %A Lawrence Korngut %A Benedikt Schoser %A Federica Montagnese %A Stephan Wenninger %A Sonia Segovia %A Jordi Diaz-Maera %A Rasha El Sherif %A Hiroto Takada %A Kristina Kastreva %A Ivailo Tournev %A Stanislav Vohanka %A Radim Mazanec %A Ben Porter %A Chiara Marini Bettolo %A Vidosava Rakocevic Stojanovic %A Stojan Peric %A Marjan Cosyns %A Sopiko Digmelashvili %A Damjan Osredkar %A Tanja Golli %A Harumasa Nakamura %A Massanori Takahashi %A Anne-Berit Ekström %A Anna Lusakowska %A Anna Kaminska %A Marie De Antonio %A Guillaume Bassez %A Hannah Murray %A Helen Walker %A Craig Campbell %A Myotonic Dystrophy TREAT-NMD Working Group %K Belgium neuromusculars diseases registry %K BNMDR %K Myotonic dystrophy %K TREAT-NMD %X

Treat-NMD is an international collaboration aimed at bringing treatments to people with neuromuscular diseases. The TREAT-NMD Myotonic Dystrophy Working Group was established in 2017 specifically to develop collaborations amongst TREAT-NMD DM registries. The aim of this study was to further develop the TREAT-NMD Global Registry Network by highlighting the registries that are affiliated and full members of TREAT-NMD and to explore the strengths and weaknesses of the collaboration.

%B IDMC12 %I IDMC %C Gothenburg, Sweden %8 11/06/2019 %G eng