Search results - 32 results
Linkage of individual-patient data confirm protection of prophylactic human papillomavirus vaccination against invasive cervical cancer
HPV human papillomavirus patient data Vaccination Abstract: INTRODUCTION The Scottish study of Palmer et al., published in the current issue of this journal, linking vaccination files with cervical ...
Clinical Evolution and Disease Burden in Belgian Cystic Fibrosis Patients: effect of Newborn Screening?
Belgian CF Registry report of 2016 including patients diagnosed between January 2006 and December 2016. Results: 306 CF patients were enrolled. Age at diagnosis was the lowest in MI patients (median 0.12 ...
Clinical Evolution and Disease Burden in Belgian Cystic Fibrosis Patients: effect of Newborn Screening?
Belgian CF Registry report of 2016 including patients diagnosed between January 2006 and December 2016. Results: 306 CF patients were enrolled. Age at diagnosis was the lowest in MI patients (median 0.12 ...
Lyme borreliosis in Belgium: a cost-of-illness analysis
clinical manifestations of LB in Belgium. Methods. An incidence approach and societal perspective were used to estimate the total cost-of-illness for LB in Belgium. Costs were calculated for patients with ...
Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe.
with cystic fibrosis (pwCF) can lead to severe outcomes. METHODS: In this observational study, the European Cystic Fibrosis Society Patient Registry collected data on pwCF and SARS-CoV-2 infection to ...
Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020.
people with CF (pwCF). METHODS: We used the 38-country European Cystic Fibrosis Society Patient Registry (ECFSPR) to collect case data about pwCF and SARS-CoV-2 infection. RESULTS: Up to 30 June 2020, 16 ...
Annual Report Belgian Cystic Fibrosis Registry 2018
of the registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends. Since its ...
Annual Report Belgian Cystic Fibrosis Registry 2017
registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends. Since its establishment in ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
patient registries in myotonic dystrophy. Eight years after this workshop, we surveyed 22 registries collecting information on myotonic dystrophy patients to assess the proliferation and utility the dataset ...
Annual report Belgian Cystic Fibrosis Registry 2016
been added. Since its establishment in 1998, the Belgium CF Registry (BCFR) has grown steadily and had 1275 patients registered in 2016. This number excludes five patients whose diagnosis for CF was revoked and ...