PaRIS - Patient Reported Indicators Survey for people living with chronic conditions

Last updated on 27-10-2021 by Amélie Van Vyve
July 1, 2019
December 31, 2023

Service(s) working on this project

Sciensano's project investigator(s):


In short

PaRIS is an international study initiated by the Organisation for Economic Cooperation and Development . The aim of this project is to develop and use tools to measure the health outcomes (Patient Reported Outcome Measures or PROM) and care experiences (Patient Reported Experience Measures or PREM) of patients aged 45 and over, suffering from one or more chronic conditions and and receiving primary care. 

It is the project’s ambition to understand the extent to which the care provided meets the needs of the population. Results provide essential information for policy makers and practitioners to optimise our healthcare system towards a more patient-centred approach. 

The OECD and an International Consortium (gathering health research experts) are in charge of the development of the study design and questionnaires. Sciensano is responsible for the implementation of the survey in Belgium, in collaboration with the OECD and the International Consortium, as well as the national stakeholders to find the best balance between the adaptation of the survey to our national context and harmonised framework across countries to ensure a data comparability.

Project summary

Many countries, including Belgium, are facing a rapid increase in the number of people living with one or more chronic diseases. This increase poses a challenge to their health systems. In order to improve the quality of care for these people, improve health outcomes and control expenditure, countries are reorganising their health systems towards more person-centred and better coordinated care.

The OECD has therefore taken the initiative to conduct a survey among its member countries to obtain more information on the functioning of primary care services from the patient’s perspective by collecting and analysing data provided by patients living with chronic condictions, including health experiences and outcomes. The results will help to identify gaps in the primary health care system, both in terms of how care is provided and for specific groups of patients or conditions.

PaRIS is a cross-sectional study, different data sources are combined for a complete analysis: 

  • characteristics of the national context of the health care system, 
  • characteristics of the health care providers, 
  • characteristics of the patients, PROM and PREM (characteristics of the country/health system/population). 

The questionnaires are developed by the OECD to ensure harmonisation of the data collected between participating countries.

The implementation of the study is carried out in two phases.

  1. A field trial, from 2021 to mid-2022, to test the procedures on a small sample 
  2. The main survey, from mid-2022 to the end of 2023, on a large sample at national level

The sampling of participants is done in two stages:

  1. Recruitment of general practices
  2. Recruitment of patients through these practices

The patients targeted are over 45 years of age, with at least one chronic condition, and have consulted a general practitioner in the last 6 months. 

The project uses two sperate questionnaires

  • One is addressed to the general practice, collecting information on the characteristics and working methods of the practice. 
  • The second questionnaire is to be completed by patients and covers 4 main areas: 
    • demographic and socio-economic data
    • health behaviour and lifestyle habits 
    • health outcomes (PROM)
    • experience with health care (PREM). 

Patients complete the questionnaire themselves. No data from the medical record will be used.

Results from the survey will be reported by the OECD, showing how key outcomes and experiences meet the patients’ needs and vary across and within countries. This allows countries to benchmark and learn from each other’s approaches, both on the organisation of care and on the care monitoring of certain pathologies.

Participating practitioners will receive a report on the results of all patients participating through their practice. The patient questionnaire is a tool to support the care provider in moving towards a more patient-centred practice.

In accordance with art.14.1 of the GDPR

Project manager

Sciensano — Amélie Van Vyve - - 02/642.54.56

Contact details of the Data Protection Officer

Sciensano : - 02/642.51.02

Purposes of processing and legal basis for processing

The personal data are intended for the patients recruitment for the PaRIS study. 
Legal basis: performance of a task in the public interest (GDPR: art.6.1.e.)

Categories of data collected

Name, first name, postal address, mobile phone number

Data source

General practitioner patient medical record (source not publicly available)

The recipient of the data collected

Symeta Hybrid SA

Storage duration of personal data

Duration equivalent to the recruitment period and data verification estimated at 6 months

Right of access, rectification, erasure, restriction of processing, as well as the right to object to processing and the right to portability of personal data

To exercise your rights, please contact your doctor.
You can also contact Sciensano via the contact form.
You have the right to lodge a complaint with a supervisory authority in Belgium: 

Data Protection Authority :

Data anonymisation procedures

The international partner, Ipsos MORI, which is responsible for the data analysis, provides a pseudonymisation code for each patient. The aim is to replace your contact details with a code, thus preventing your answers from being linked to your identity in order to guarantee confidentiality. Ipsos MORI will use this code to analyse the data. The link between the code and your identity will only be stored at national level for the time necessary to collect and verify the data. The code is also intended to link the patient’s results to the doctor’s results during analysis.

A precise description of the historical, statistical or scientific purposes of the processing

Collect quality of care indicators from patients with chronic diseases who use primary care. These include indicators of your health experience and outcomes, as well as demographic, socio-economic, health behaviour and lifestyle indicators.

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