TEHDAS/AHEAD - Healthy Data e-consultation

The citizen e-consultation “Healthy Data — your views on the reuse of your health data” aims at raising awareness, stimulate the reflexion and engage the discussion with and between citizens on the use of health data beyond individual care. 
 
The preliminary work to prepare this project highlighted the general lack of clarity for citizens regarding the use of health data for purposes beyond individual care, including over their own rights and the existing safeguards. The Healthy Data e-consultation offers citizens a place to inform and express themselves, as well as a space to debate over the second life of their health data and the role that they could play in it. The specificity of this consultation is that it offers citizens an open discussion platform where they can exchange with other participants on the second life of our health data. 
 
This e-consultation is available in French, Dutch and English and accessible to any European citizen willing to participate. This project is being carried out within the framework of the European Joint Action “Towards a European Health Data Space” (TEHDAS) and the Belgian initiative “Towards the development of a National Health Data Platform” (AHEAD). Both projects aim at facilitating the use of health data for improving health, care and services through research and planning. 
 
The ideas and opinions expressed by citizens during this e-consultation feed into recommendations on how to sensitise citizens to and engage them with the re-use of their health data in a European perspective. They are delivered to the EU commission and are contributed to the structuration of health data use and sharing policies and practices in Europe.