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Annual report Belgian Cystic Fibrosis Registry 2016

fifteen without a confirmed diagnosis. There were 23 newly diagnosed patients in 2016, among them three adults, with a median age at diagnosis of 3.8 months with a range from birth to 52.3 years. All the ...

The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease

calculation were derived using generic quality-of-life tools such as SF-6D from the SF-36 (36-item Short-Form Health Survey; for adults) and KINDL (generic quality-of-life instrument; for children) compared to ...

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