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Rapport annuel- registre belge des maladies neuromusculaires 2015
a general overview of such a heterogeneous group of patients. General demographic data show a slightly higher number of males than females (N = 2610 versus N = 2043). The patients’ recruitment is currently ...
How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?
demographic and clinical sub-groups and its sensitivity to change. ACTIVLIM confirmed excellent fit to a unidimensional scale, with stable but 3-times more accurate item calibrations compared to the original ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
Belg, Volume 115, Issue 2, p.97-104 (2015) Keywords: Adult Belgium cross-sectional studies Female Humans Male middle aged Neuromuscular Diseases Online Systems prevalence Rare diseases REGISTRIES ...