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Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Dystrophy Working Group was established in 2017 specifically to develop collaborations amongst TREAT- NMD DM registries. The aim of this study was to further develop the TREAT- NMD Global Registry Network by ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: A. Roy Source: Wetenschappelijk Instituut Volksgezondheid, Brussels, Belgium, p.52 (0) Keywords: BNMDR ...

Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).

disorder were registered. The most prevalent disease group in the Registry is Hereditary Motor and Sensory Neuropathy, as similarly stated by other studies, albeit the prevalence in Belgium is five times ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010

into two sections: socio-demographic and pathological. Four thousand and sixty six (4,066) patients were entered into the BNMDR in 2013. The distribution of these patients among the 62 groups of ...

Quantifying the changes in activity level of neuromuscular patients using the ACTIVLIM questionnaire: A 5-years study

Beysen, D.; Van den Bergh, P.; Paquay, S.; Servais, L.; Maertens de Noordhout, A.; Haan, J.; De Meirleir, L.; Remiche, G.; Deconinck, N.; Arnould, C.; BNMDR study group, Source: 12th ISPRM World Congress ...

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