Search results - 4 results
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Group was established in 2017 specifically to develop collaborations amongst TREAT- NMD DM registries. The aim of this study was to further develop the TREAT- NMD Global Registry Network by highlighting ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010
Keywords: BNMDR Neuromuscular Diseases Registry Abstract: The Belgian Neuromuscular Disease Registry (BNMDR) was set up at the initiative of the National Institute of Health and Disability Insurance of ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010
still persists between the study population and the target population. However, since its inception, the BNMDR continues each year to improve data quality and the completeness of the registry and to track ...
Quantifying the changes in activity level of neuromuscular patients using the ACTIVLIM questionnaire: A 5-years study
den Bergh; S. Paquay; L. Servais; A. Maertens de Noordhout; J. Haan; L. De Meirleir; G. Remiche; N. Deconinck; C. Arnould; BNMDR study group Source: 12th ISPRM World Congress (2018) Keywords: Activity ...