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Rapport annuel- registre belge des maladies neuromusculaires 2015

disease and to improve recruitment for clinical trials. The patients’ recruitment increases every year since the registry’s creation in 2008. In 2015, a total number of 4670 patients were registered. The ...

How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?

demographic and clinical sub-groups and its sensitivity to change. ACTIVLIM confirmed excellent fit to a unidimensional scale, with stable but 3-times more accurate item calibrations compared to the original ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010

research (clinical, epidemiological, and etiological) in the field of neuromuscular diseases” [4,5]. This report provides an overview of the data harvested for the year 2014 and outlines the trends ...

The TREAT-NMD DMD Global Database: analysis of more than 7,000 Duchenne muscular dystrophy mutations

Verschuuren,J.; Aartsma-Rus,A.; Beroud,C.; Lochmuller,H. Source: Hum.Mutat., Volume 36, Issue 4, Number 402, p.395- 402 (2015) Keywords: a ALL an analysi analysis article Benefit care Clinical data Database ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010

research (clinical, epidemiological, and aetiological) in the field of neuromuscular diseases”. This report provides an overview of the data harvested for the year 2013 and outlines the trend identified in ...

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia

article at Clinical Countries delivery Design Development disease Diseases Duchenne muscular dystrophy Dystrophin electronic growth implementation Increase Individuals Industries Industry INFORMATION ...

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