Search results - 4 results
Rapport annuel registre belge des maladies neuromusculaires (BNMDR) 2015
collecter certaines données directement sur une tablette qui serait mise à disposition du patient dans la salle d’attente pourrait contribuer à diminuer la charge de travail des data managers au sein des ...
Rapport annuel- registre belge des maladies neuromusculaires 2015
better in the north than in the south of the country. This is presumably due to the geographical repartition of the reference centers collecting the data. Nevertheless, the gap between those two regions ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
Retrospective Studies Abstract: The Belgian Neuromuscular Disease Registry, commissioned in 2008, aims to collect data to improve knowledge on neuromuscular diseases and enhance quality health services for ...
The TREAT-NMD DMD Global Database: analysis of more than 7,000 Duchenne muscular dystrophy mutations
Verschuuren,J.; Aartsma-Rus,A.; Beroud,C.; Lochmuller,H. Source: Hum.Mutat., Volume 36, Issue 4, Number 402, p.395- 402 (2015) Keywords: a ALL an analysi analysis article Benefit care Clinical data Database ...