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Annual report Belgian Cystic Fibrosis Registry 2020

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Simeon Wanyama; Géraldine Daneau; Lieven Dupont; Kim Van Hoorenbeeck Source: Sciensano, Brussels, Belgium, p.120 (2024) Keywords: Cystic Fibrosis mucoviscidose Healt ...

Annual Report Belgian Cystic Fibrosis Registry 2021

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Simeon Wanyama; Géraldine Daneau; Lieven Dupont; Kim Van Hoorenbeeck Source: Sciensano, Brussels, Belgium, p.120 (2023) Accession Number: D/2023.14.440/72 Keywords: ...

Clinical Evolution and Disease Burden in Belgian Cystic Fibrosis Patients: effect of Newborn Screening?

Issue 4, Number 297 (2023) Abstract: Objectives: We compared the clinical evolution and disease burden of 3 groups of Belgian children with cystic fibrosis (CF) depending on the mode of diagnosis: ...

WS03.03 Clinical outcomes and long-term survival in cystic fibrosis (CF) lung transplant recipients in Belgium

Publication Type: Scientific poster, presentation or proceeding Authors: Thomas, M.; Dupont, L.; Knoop, C.; Wanyama, S.; Evrard, P.; Rondelet, B.; Kuylen, M. Vander; Van Muylem, A.; Van Raemdonck, D. Source: Journal of Cystic Fibrosis, Volume 22, Vienna, ...

P142 Review of diagnostic labels for patients with unconfirmed cystic fibrosis diagnosis using registry data

Publication Type: Scientific poster, presentation or proceeding Authors: Wanyama, S. Situma; Daneau, G.; De Wachter, E.; Dupont, L. Source: Journal of Cystic Fibrosis, Volume 22, Vienna, Austria (2023) Health Topics:  Cystic fibrosis Cystische fibrose Fib ...

P146 COVID-19 pandemic in the Belgian cystic fibrosis patients compared with the international cystic fibrosis patients and the general Belgian population

Publication Type: Scientific poster, presentation or proceeding Authors: Daneau, G.; Wanyama, S. Situma; Van Hoorenbeeck, K. Source: Journal of Cystic Fibrosis, Volume 22, Vienna, Austria (2023) Health Topics:  Cystic fibrosis Cystische fibrose Fibrose cy ...

Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe.

therapy were lung transplantation, cystic fibrosis-related diabetes (CFRD), moderate or severe lung disease and azithromycin use (often considered a surrogate marker for infection and poorer lung function). ...

COVID-19 vaccine prioritisation for people with cystic fibrosis.

Publication Type: Peer reviewed scientific article Authors: Siobhán B Carr; Rebecca Cosgriff; Harutyunyan, Satenik; Middleton, Peter G; Rasa Ruseckaite; Susannah Ahern; Géraldine Daneau; Filho, Luiz Vicente R F da Silva; Anne L Stephenson; Stephanie Y Che ...

Annual Report Belgian Cystic Fibrosis Registry 2018

period at about 3.5% over the years since 2014.   Thanks to improved disease management and novel treatments, the life expectancy and the quality of life of patients with CF has improved significantly when ...

The global impact of SARS-CoV-2 in 181 people with cystic fibrosis

Publication Type: Peer reviewed scientific article Authors: Elliot McClenaghan; Rebecca Cosgriff; Keith Brownlee; Susannah Ahern; Pierre-Régis Burgel; Catherine A Byrnes; Colombo, Carla; Harriet Corvol; Stephanie Y Cheng; Géraldine Daneau; Alexander Elber ...

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