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Belgian NMD registry

neuromuscular diseases registry BNMDR Abstract: This presentation gives a brief overview of the Belgian neuromuscular diseases registry and includes information on the set up, overall numbers, projects ...

Belgian neuromuscular diseases registry, information brochure for patients, 2020

neuromuscular diseases registry BNMDR brochure patients Abstract: Neuromuscular diseases are rare diseases but are affecting more than 250 000 people in Europe. Together we can make a difference. Join us! Health ...

Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Guillaume Bassez; Hannah Murray; Helen Walker; Craig Campbell; Myotonic Dystrophy TREAT-NMD Working Group Source: IDMC12, IDMC, Gothenburg, Sweden (2019) Keywords: Belgium neuromusculars diseases registry ...

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

symptoms. In 2009 TREAT- NMD (a global alliance with the mission of improving trial readiness for neuromuscular diseases) and the Marigold Foundation held a workshop of key opinion leaders to agree a minimal ...

Rapport annuel registre belge des maladies neuromusculaires (BNMDR) 2015

CRNM.   Health Topics:  Maladies neuromusculaires Neuromuscular diseases Neuromusculaire aandoeningen Service:  Étude des soins de santé Gezondheidszorgonderzoek Health services research Manuscript ...

Rapport annuel- registre belge des maladies neuromusculaires 2015

D/2017/2505/08 Keywords: BNMDR Maladies neuromusculaires registre Abstract: The goals of the Belgian neuromuscular diseases registry are to enable epidemiological research to evaluate the importance of the ...

Jaarverslag Belgisch register van neuromusculaire aandoeningen (BNMDR) 2015

D/2017/2505/09 Keywords: BNMDR neuromusculaire ziekten Register Abstract: The goals of the Belgian neuromuscular diseases registry are to enable epidemiological research to evaluate the importance of the diseases ...

How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?

Disorders, Volume 26, Issue 3 (2016) Keywords: Activity limitations Neuromuscular Diseases Patient-reported outcome measure Rasch analysis Abstract: This study aims to investigate the clinimetric properties of ...

Folder met informatie voor patiënten | Belgisch register van neuromusculaire aandoeningen (BNMDR)

aandoening Health Topics:  Maladies neuromusculaires Neuromuscular diseases Neuromusculaire aandoeningen Service:  Étude des soins de santé Gezondheidszorgonderzoek Health services research Manuscript ...

Brochure d'information pour les patients | Registre belge des maladies neuromusculaires (BNMDR)

neuromusculaires Health Topics:  Maladies neuromusculaires Neuromuscular diseases Neuromusculaire aandoeningen Service:  Étude des soins de santé Gezondheidszorgonderzoek Health services research Manuscript ...

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