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Belgian NMD registry

neuromuscular diseases registry BNMDR Abstract: This presentation gives a brief overview of the Belgian neuromuscular diseases registry and includes information on the set up, overall numbers, projects ...

Belgian neuromuscular diseases registry, information brochure for patients, 2020

neuromuscular diseases registry BNMDR brochure patients Abstract: Neuromuscular diseases are rare diseases but are affecting more than 250 000 people in Europe. Together we can make a difference. Join us! Health ...

Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Guillaume Bassez; Hannah Murray; Helen Walker; Craig Campbell; Myotonic Dystrophy TREAT-NMD Working Group Source: IDMC12, IDMC, Gothenburg, Sweden (2019) Keywords: Belgium neuromusculars diseases registry ...

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

TREAT- NMD (a global alliance with the mission of improving trial readiness for neuromuscular diseases) and the Marigold Foundation held a workshop of key opinion leaders to agree a minimal dataset for ...

Quantifying the changes in activity level of neuromuscular patients using the ACTIVLIM questionnaire: A 5-years study

assessment Neuromuscular Diseases Health Topics:  Health and disease monitoring Surveillance de la santé et des maladies Ziekten en gezondheid in kaart brengen Service:  Étude des soins de santé ...

Belgisch register van neuromusculaire aandoeningen, jaarverslag 2016

spinale musculaire atrofie, zamelt het register ook bijkomende gegevens in voor het internationale TREAT- NMD-netwerk (Translational Research in Europe – Assessment and Treatment of NeuroMuscular Diseases ...

Database crossing allows better understanding of neuromuscular disorders epidemiology: The Belgian example

Topics:  Health and disease monitoring Surveillance de la santé et des maladies Ziekten en gezondheid in kaart brengen Service:  Étude des soins de santé Gezondheidszorgonderzoek Health services research ...

Quantifying activity changes of neuromuscular patients using the ACTIVLIM questionnaire: a 5-years longitudinal study

(2018) Health Topics:  Health and disease monitoring Surveillance de la santé et des maladies Ziekten en gezondheid in kaart brengen Service:  Étude des soins de santé Gezondheidszorgonderzoek Health ...

Belgian neuromuscular diseases registry (BNMDR): Results and trends of the 2017 data collection

Publication Type: Scientific poster, presentation or proceeding Authors: Marjan Cosyns Source: Séminaire de neurosciences cliniques à l'hôpital Erasme (2018) Health Topics:  Health and disease ...

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