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Clinical Evolution and Disease Burden in Belgian Cystic Fibrosis Patients: effect of Newborn Screening?

Issue 4, Number 297 (2023) Abstract: Objectives: We compared the clinical evolution and disease burden of 3 groups of Belgian children with cystic fibrosis (CF) depending on the mode of diagnosis: ...

Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe.

with cystic fibrosis (pwCF) can lead to severe outcomes. METHODS: In this observational study, the European Cystic Fibrosis Society Patient Registry collected data on pwCF and SARS-CoV-2 infection to ...

Annual Report Belgian Cystic Fibrosis Registry 2018

of the registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends.     Since its ...

Annual Report Belgian Cystic Fibrosis Registry 2017

registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends. Since its establishment in ...

Inhaled corticosteroids and lower lung function decline in young children with cystic fibrosis.

American registry analysis in cystic fibrosis (CF) children showed less lung function decline after starting inhaled corticosteroid (ICS) use. We therefore examined the influence of ICS treatment on lung ...

The burden of cystic fibrosis in Belgium: a registry-based study

substantial distress on patient level. However, the specific impact on individual health as well as the national impact on public health remains to be elucidated. The aim of this dissertation is to quantify and ...

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