Search results - 11 results

Clinical Evolution and Disease Burden in Belgian Cystic Fibrosis Patients: effect of Newborn Screening?

Belgian CF Registry report of 2016 including patients diagnosed between January 2006 and December 2016. Results: 306 CF patients were enrolled. Age at diagnosis was the lowest in MI patients (median 0.12 ...

P142 Review of diagnostic labels for patients with unconfirmed cystic fibrosis diagnosis using registry data

Publication Type: Scientific poster, presentation or proceeding Authors: Wanyama, S. Situma; Daneau, G.; De Wachter, E.; Dupont, L. Source: Journal of Cystic Fibrosis, Volume 22, Vienna, Austria (2023) Health Topics:  Cystic fibrosis Cystische fibrose Fib ...

P146 COVID-19 pandemic in the Belgian cystic fibrosis patients compared with the international cystic fibrosis patients and the general Belgian population

Publication Type: Scientific poster, presentation or proceeding Authors: Daneau, G.; Wanyama, S. Situma; Van Hoorenbeeck, K. Source: Journal of Cystic Fibrosis, Volume 22, Vienna, Austria (2023) Health Topics:  Cystic fibrosis Cystische fibrose Fibrose cy ...

Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe.

with cystic fibrosis (pwCF) can lead to severe outcomes. METHODS: In this observational study, the European Cystic Fibrosis Society Patient Registry collected data on pwCF and SARS-CoV-2 infection to ...

Annual Report Belgian Cystic Fibrosis Registry 2018

of the registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends.     Since its ...

Clinical Evolution and Disease Burden of Cystic Fibrosis Patients after Newborn Screening and Clinical Diagnosis

Publication Type: Dissertation Authors: Noelia Rodriguez Mier; Simeon Wanyama; Géraldine Daneau; Proesmans, Marijke Source: KU Leuven, Leuven, Belgium (2020) Keywords: Cystic Fibrosis mucoviscidose Neonatal Screening Health Topics:  Cystic fibrosis Cystis ...

Annual Report Belgian Cystic Fibrosis Registry 2017

registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends. Since its establishment in ...

Risk factors and impact of allergic bronchopulmonary aspergillosis in Pseudomonas aeruginosa-negative CF patients.

BACKGROUND: Allergic bronchopulmonary aspergillosis (ABPA) is a major complication in cystic fibrosis (CF) patients. Risk factors for ABPA and clinical deterioration in CF patients, negative for Pseudomonas ...

Inhaled corticosteroids and lower lung function decline in young children with cystic fibrosis.

function in Belgian CF patients. Data from patients ≥ 6 yrs of age were eligible, provided entries on lung function, height and ICS use were available in two consecutive years. Data after oral steroid use or ...

The burden of cystic fibrosis in Belgium: a registry-based study

substantial distress on patient level. However, the specific impact on individual health as well as the national impact on public health remains to be elucidated. The aim of this dissertation is to quantify and ...

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