Search results - 8 results
Rapport annuel registre belge des maladies neuromusculaires (BNMDR) 2015
neuromusculaires par rapport à d’autres registres de soins de santé, est que la population de patients n’est absolument pas homogène. Le terme “maladie neuromusculaire” regroupe en effet différentes maladies rares ...
Rapport annuel- registre belge des maladies neuromusculaires 2015
particularity of a registry dedicated to neuromuscular disorders (compared to other health care registries) is that the patients’ population is heterogeneous. Neuromuscular disorders comprise indeed different ...
Registre belge des maladies neuromusculaires (BNMDR) 2014 | Résultats et tendances depuis 2010
patients atteints de MNM en Belgique. On observe encore une grande disparité entre la population étudiée et la population cible. Health Topics: Maladies neuromusculaires Neuromuscular diseases ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010
with NMD in Belgium. Significant disparity still persists between the study population and the target population. Health Topics: Maladies neuromusculaires Neuromuscular diseases Neuromusculaire ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
Retrospective Studies Abstract: The Belgian Neuromuscular Disease Registry, commissioned in 2008, aims to collect data to improve knowledge on neuromuscular diseases and enhance quality health services for ...
Registre belge des maladies neuromusculaires (BNMDR) 2013 | Résultats et tendances depuis 2010
que dans d’autres caractéristiques des patients et limitant de ce fait les extrapolations au niveau de la population cible des patients atteints de MNM en Belgique. Il y a encore une grande disparité ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010
Keywords: BNMDR Neuromuscular Diseases Registry Abstract: The Belgian Neuromuscular Disease Registry (BNMDR) was set up at the initiative of the National Institute of Health and Disability Insurance of ...
The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia
POPULATION prevalence protein Rare disease REGISTRIES Registry successful Therapy UK utilization Abstract: Duchenne muscular dystrophy (DMD) is an X-linked genetic disease, caused by the absence of the ...