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Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020.

 (pwCF). METHODS: We used the 38-country European Cystic Fibrosis Society Patient Registry (ECFSPR) to collect case data about pwCF and SARS-CoV-2 infection. RESULTS: Up to 30 June 2020, 16 countries ...

Annual report Belgian Cystic Fibrosis Registry 2019

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Wanyama, Simeon; Daneau, Géraldine; Dupont, Lieven Source: Sciensano, Brussels, Belgium, p.104 (2021) Accession Number: D/2020/14.440/85 Keywords: annual report Cyst ...

Belgian NMD registry

neuromuscular diseases registry BNMDR Abstract: This presentation gives a brief overview of the Belgian neuromuscular diseases registry and includes information on the set up, overall numbers, projects ...

Annual report Belgian Cystic Fibrosis Registry 2018

of the registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends.     Since its ...

The Belgian Cystic Fibrosis Registry- Facts and highlights 2018

https://www.sciensano.be/en/biblio/belgian-cystic-fibrosis-registry-facts-and-hi... File:  Version:  Published Full text access:  Public Access Full text language:  English Category:  F21 FOS Classification:  3.02 Clinical medicine ...

Belgian neuromuscular diseases registry, information brochure for patients, 2020

neuromuscular diseases registry BNMDR brochure patients Abstract: Neuromuscular diseases are rare diseases but are affecting more than 250 000 people in Europe. Together we can make a difference. Join us! Health ...

Collaborative data collection by TREAT-NMD Registries to support post-marketing surveillance in Spinal Muscular Atrophy

Publication Type: Scientific poster, presentation or proceeding Authors: Rodrigues, Miriam; Bullivant, JoAnne; Hodgkinson, Victoria; TREAT-NMD Registry Curators; Jagut, Marlène; Straub, Volker; ...

Annual Report Belgian Cystic Fibrosis Registry 2017

registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends. Since its establishment in ...

The Belgian Cystic Fibrosis Registry- Facts and highlights 2017

https://www.sciensano.be/en/biblio/belgian-cystic-fibrosis-registry-facts-and-hi... File:  Version:  Published Full text access:  Public Access Full text language:  English Category:  F21 FOS Classification:  3.02 Clinical medicine ...

Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Guillaume Bassez; Hannah Murray; Helen Walker; Craig Campbell; Myotonic Dystrophy TREAT-NMD Working Group Source: IDMC12, IDMC, Gothenburg, Sweden (2019) Keywords: Belgium neuromusculars diseases registry ...

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