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The effect of enteral tube feeding in cystic fibrosis: A registry based study.

(CF) remains equivocal. METHODS: A Belgian CF registry based, retrospective, longitudinal study, evaluated the pre- and post- ETF (n = 113) clinical evolution and compared each patient with 2 age, ...

What can the CF registry tell us about rare CFTR-mutations? A Belgian study.

in CF-disease liability is hardly documented. METHODS: Belgian CF-Registry 2013 data were analyzed to identify CF with at least 1 RM (CF + RM). Clinical data and sweat chloride of CF + RM were compared ...

Does newborn screening influence the young cystic fibrosis cohort included in national registries?

Publication Type: Peer reviewed scientific article Authors: De Boeck, Kris; Munck, Anne; de Monestrol, Isabelle; Gulmans, Vincent; Lemonnier, Lydie; Middleton, Peter G; Simeon Wanyama; Muriel Thomas Source: Eur Respir J, Volume 49, Issue 1 (2017) Health T ...

Treatment burden in patients with at least one class IV or V CFTR mutation

Conductance Regulator Drug Utilization Female Genotype Hospitalization Humans Infant Infant, Newborn Male Mutation Organ Transplantation REGISTRIES Respiratory Therapy Retrospective Studies Severity of Illness ...

Annual Report Belgian Cystic Fibrosis Registry 2013.

D/2015/2505/30 Keywords: annual report Belgian Belgium Cystic Fibrosis data Fibrosis REGISTRIES Registry report Health Topics:  Mucoviscidose Mucoviscidose Mucoviscidosis Service:  Étude des soins de santé ...

Jaarlijks Rapport Belgisch Mucoviscidose Register 2013.

D/2015/2505/32 Keywords: Belgium Cystic Fibrosis data de Fibrosis mucoviscidose rapport Register REGISTRIES Registry report Abstract: In dit rapport worden de gegevens voorgesteld, verzameld in 2013. We hopen dat ...

Rapport Annuel Registre Belge de la Mucoviscidose 2013.

D/2015/2505/31 Keywords: Belge Belgium Cystic Fibrosis data de Fibrosis mucoviscidose rapport rapport annuel registre REGISTRIES Registry report Health Topics:  Mucoviscidose Mucoviscidose Mucoviscidosis Service:  ...

Is there evidence for correct diagnosis in cystic fibrosis registries?

Regulator Diagnostic Errors Europe Female Humans Male middle aged REGISTRIES Young adult Abstract: BACKGROUND: Cystic fibrosis (CF) spans a wide spectrum. Therefore, benchmarking between registries implies ...

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