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Changes in anticancer treatment plans in patients with solid cancer hospitalized with COVID-19: analysis of the nationwide BSMO-COVID registry providing lessons for the future

Publication Type: Peer reviewed scientific article Authors: T. Geukens; M. Brandão; A. Laenen; J. Collignon; C. Van Marcke; I. Louviaux; W. Demey; S. Van Wambeke; D. Schrijvers; S. Lecomte; J. Mebis; A. Rutten; C. Fontaine; W. Lybaert; S. Aspeslagh; J.-C. ...

Validity of self-reported air pollution annoyance to assess long-term exposure to air pollutants in Belgium

survey participants through Geographical Information Systems (GIS). However, obtaining georeferenced address data from national registries requires a long and cumbersome administrative procedure, since ...

ePS4.02 Impact of COVID-19 on the disease course in cystic fibrosis? A Registry-based study

Publication Type: Scientific poster, presentation or proceeding Authors: Vandekerckhove, J.; Wanyama, S.S.; Daneau, G.; Peeters, L.; DeWachter, E. Source: Journal of Cystic Fibrosis, Volume 21, Rotterdam, The Netherlands (2022) Service:  Étude des soins d ...

Unravelling data for rapid evidence-based response to COVID-19: a summary of the unCoVer protocol.

information from over 22 000 hospitalised patients with COVID-19, and national surveillance and screening data, and registries with over 1 900 000 COVID-19 cases across Europe, with continuous updates. These ...

Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe.

with cystic fibrosis (pwCF) can lead to severe outcomes. METHODS: In this observational study, the European Cystic Fibrosis Society Patient Registry collected data on pwCF and SARS-CoV-2 infection to ...

Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020.

people with CF  (pwCF). METHODS: We used the 38-country European Cystic Fibrosis Society Patient Registry (ECFSPR) to collect case data about pwCF and SARS-CoV-2 infection. RESULTS: Up to 30 June 2020, 16 ...

Annual Report Belgian Cystic Fibrosis Registry 2019

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Simeon Wanyama; Géraldine Daneau; Dupont, Lieven Source: Sciensano, Brussels, Belgium, p.104 (2021) Accession Number: D/2020/14.440/85 Keywords: annual report Cystic ...

Conducting national burden of disease studies in small countries in Europe– a feasible challenge?

expertise, and engage with countries and institutions that have long-standing experience with BoD assessment. Conclusion Apart from mortality registries, adequate health data sources, notably for cancer, are ...

Conceptual causal framework to assess the effect of SARS-CoV-2 variants on COVID-19 disease severity among hospitalized patients

data requirements, and it underlines important limitations, such as unmeasured confounders or selection bias, inherent to repurposing existing routine COVID-19 data registries. TRIAL REGISTRATION: Each ...

Belgian NMD registry

neuromuscular diseases registry BNMDR Abstract: This presentation gives a brief overview of the Belgian neuromuscular diseases registry and includes information on the set up, overall numbers, projects ...

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