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Collaborative data collection by TREAT-NMD Registries to support post-marketing surveillance in Spinal Muscular Atrophy

Goemans, Nathalie; Ambrosini, Anna; Campbell, Craig Source: TREAT-NMD conference, TREAT-NMD, Leiden, The Netherlands (2019) Keywords: Data collection post-marketing surveillance SMA TREAT-NMD Abstract: ...

Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Stojanovic; Stojan Peric; Marjan Cosyns; Sopiko Digmelashvili; Damjan Osredkar; Tanja Golli; Harumasa Nakamura; Massanori Takahashi; Anne-Berit Ekström; Anna Lusakowska; Anna Kaminska; Marie De Antonio; ...

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