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National registries of rare diseases in Europe: an overview of the current situation and experiences.
Christiane Steinmueller; Elfriede Swinnen; Herman Van Oyen Source: Public Health Genomics, Volume 18, Issue 1 (2015) Keywords: Databases, Factual Delivery of Health Care Europe European Union Humans ...
Identification of rare disease codes in ICD-9-CM and exploration of Belgian Minimal Hospital Data
Publication Type: Scientific poster, presentation or proceeding Authors: Montse Urbina Paz; A. D'Hav; Viviane Van Casteren; Mertens,I.; Elfriede Swinnen; European Society of Human Genetics ...