Search results - 5 results

How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?

publication. It showed a good reliability (R = 0.95), an appropriate targeting for 87% of the sample and an excellent invariance across age, gender, language and time. Despite some variations in the item ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010

research (clinical, epidemiological, and etiological) in the field of neuromuscular diseases” [4,5]. This report provides an overview of the data harvested for the year 2014 and outlines the trends ...

The TREAT-NMD DMD Global Database: analysis of more than 7,000 Duchenne muscular dystrophy mutations

Verschuuren,J.; Aartsma-Rus,A.; Beroud,C.; Lochmuller,H. Source: Hum.Mutat., Volume 36, Issue 4, Number 402, p.395- 402 (2015) Keywords: a ALL an analysi analysis article Benefit care Clinical data Database ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010

research (clinical, epidemiological, and aetiological) in the field of neuromuscular diseases”. This report provides an overview of the data harvested for the year 2013 and outlines the trend identified in ...

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia

Lynn,S.; Heslop,E.; Gainotti,S.; Taruscio,D.; Kirschner,J.; Verschuuren,J.; Bushby,K.; Beroud,C.; Lochmuller,H. Source: Hum.Mutat., Volume 34, Issue 11, Number 1457, p.1449- 1457 (2013) Keywords: Absence an ...

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