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The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease

calculation were derived using generic quality-of-life tools such as SF-6D from the SF-36 (36-item Short-Form Health Survey; for adults) and KINDL (generic quality-of-life instrument; for children) compared to ...

Annual report Belgian Cystic Fibrosis Registry 2016

can be compared to the start of the registry 17 years ago when 39.0% were adults with a median age of 14.9 years. 46.7% of the patients are homozygous for the F508 del mutation while 37.0% are F508 del ...

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