Search results - 4 results
Rapport annuel- registre belge des maladies neuromusculaires 2015
disease and to improve recruitment for clinical trials. The patients’ recruitment increases every year since the registry’s creation in 2008. In 2015, a total number of 4670 patients were registered. The ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
Retrospective Studies Abstract: The Belgian Neuromuscular Disease Registry, commissioned in 2008, aims to collect data to improve knowledge on neuromuscular diseases and enhance quality health services for ...
The TREAT-NMD DMD Global Database: analysis of more than 7,000 Duchenne muscular dystrophy mutations
the type and frequency of patient-specific mutations that give rise to Duchenne muscular dystrophy (DMD) is an invaluable tool for diagnostics, basic scientific research, trial planning, and improved ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010
still persists between the study population and the target population. However, since its inception, the BNMDR continues each year to improve data quality and the completeness of the registry and to track ...