Search results - 5 results

Identification of rare disease codes in ICD-9-CM and exploration of Belgian Minimal Hospital Data

health care HEALTH-CARE hospital hospital admission hospitals Human ICD identification identify INFORMATION Information system IS IT LEVEL List mapping methodology need ON Order Orphanet Patient questions ...

The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease

Orphanet J Rare Dis, Volume 9 (2014) Keywords: Belgium Blood Coagulation Factors Cohort Studies Cost of Illness Hemophilia A Humans Abstract: BACKGROUND: Haemophilia is a rare hereditary haemorrhagic disease ...

Orphanet: een portaal voor zeldzame ziekten

Publication Type: Popular-science publication (vulgarising publication) Authors: Elfriede Swinnen Source: Medi-Sfeer, Volume 420, Number 25, p.23- 25 (2013) ISBN: 1372-0600 Keywords: Inserm Orphanet ...

Orphanet België en nationaal register zeldzame ziekten

Publication Type: Scientific poster, presentation or proceeding Authors: Swinnen, Elfriede Source: RaDiOrg Algemene Vergadering en Ledendag, NA, Issue RaDiOrg, NA (2013) Keywords: België EN Orphanet ...

Towards a central registry for rare disease patients in Belgium

improve incidence Indicator Indicators IS IT LEVEL measure measures methodology Monitoring need needs Nomenclature ON orphan Orphanet Patient Patient Care patients Planning prevalence public Quality Rare ...

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