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Orphanet Belgium activity report 2020

D/2021/14.440/37 Keywords: Database Orphanet Rare diseases Health Topics:  Rare diseases Maladies rares Zeldzame ziekten Service:  Épidémiologie et santé publique Epidemiologie en volksgezondheid Epidemiology and ...

Orphanet vertaling: activiteitenrapport (2020)

Publication Type: Sci. report, recommendat°, guidance doc., directive, monograph Authors: Kim Van Roey; Elfriede Swinnen Source: Sciensano, Brussels, Belgium, p.17 (2021) Keywords: Orphanet Rare ...

Orphanet Belgium activiteitenrapport 2017-2019

D/2020/14.440/98 Keywords: Database Orphanet Rare diseases Health Topics:  Orphan diseases Weesziekten Maladies orphelines Surveillance de la santé et des maladies Ziekten en gezondheid in kaart brengen Service:  ...

Orphanet Belgium activity report 2017-2019

Number: D/2020/14.440/99 Keywords: Rare diseases & Orphanet & database Health Topics:  Orphan diseases Weesziekten Maladies orphelines Service:  Épidémiologie et santé publique Epidemiologie en ...

Rapport d'activité Orphanet Belgium 2017-2019

Number: D/2020/14.440/97 Keywords: Orphanet & maladies rares & base de données Health Topics:  Rare diseases Maladies rares Zeldzame ziekten Service:  Épidémiologie et santé publique Epidemiologie ...

Orphanet vertaling: activiteitenrapport (2018-2019)

Number: D/2020/14.440/92; D/2020/14.440/94; D/2020/14.440/93 Keywords: Orphanet Rare diseases Health Topics:  Rare diseases Maladies rares Zeldzame ziekten Manuscript versions:  File:  Version:  Published ...

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

Richard Roxburgh; Benedikt Schoser; Sonia Segovia; Andriy Shatillo; Simone Thiele; Ivailo Tournev; Baziel van Engelen; Stanislav Vohanka; Hanns Lochmüller Source: Orphanet J Rare Dis, Volume 13, Issue ...

What can the CF registry tell us about rare CFTR-mutations? A Belgian study.

Publication Type: Peer reviewed scientific article Authors: De Wachter, E; Muriel Thomas; Simeon Wanyama; Seneca, S; Malfroot, A Source: Orphanet J Rare Dis, Volume 12, Issue 1, p.142 (2017) ...

The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease

Orphanet J Rare Dis, Volume 9 (2014) Keywords: Belgium Blood Coagulation Factors Cohort Studies Cost of Illness Hemophilia A Humans Abstract: BACKGROUND: Haemophilia is a rare hereditary haemorrhagic disease ...

General Practice Care for Patients with Rare Diseases in Belgium. A Cross-Sectional Survey.

(ii) characteristics of one to three most recently seen patients. Rare diseases were matched against Orphanet (www.orpha.net). GP encounter frequency and patients’ age were compared to the total general ...

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