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Rapport annuel- registre belge des maladies neuromusculaires 2015
particularity of a registry dedicated to neuromuscular disorders (compared to other health care registries) is that the patients’ population is heterogeneous. Neuromuscular disorders comprise indeed different ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010
The analyses point to a bias in geographical distribution, as well as in other patient characteristics, thereby limiting extrapolation of the registry information to the target population of patients ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
patients with a neuromuscular disorder were registered. The most prevalent disease group in the Registry is Hereditary Motor and Sensory Neuropathy, as similarly stated by other studies, albeit the ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010
and regional differences for other patient characteristics. We can conclude that this study offers an initial insight into neuromuscular diseases through reference centres in Belgium. The analyses point ...