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How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?
demographic and clinical sub-groups and its sensitivity to change. ACTIVLIM confirmed excellent fit to a unidimensional scale, with stable but 3-times more accurate item calibrations compared to the original ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
prevalence in Belgium is five times lower: 6.5 per 100,000 in the north of Belgium, versus 17.0-41.0 per 100,000 in other areas of Europe. Very few patients were captured in the south of the country. With the ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010
the evolution of NMD over time. Health Topics: Maladies neuromusculaires Neuromuscular diseases Neuromusculaire aandoeningen Service: Étude des soins de santé Gezondheidszorgonderzoek Health services ...