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Send a question to our expert about Rare diseases
Send a question to our expert about Rare diseases
Katrien Van Der Kelen
Scientist
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Contacts
Health services research
Amina Jirari
Laura Debouverie
Simeon Situma Wanyama
Marlène Jagut
Géraldine Daneau
Marjan Cosyns
Nathalie Lannoy
Katrien Van Der Kelen
Kim Van Roey
Annabelle Calomme
Peer-reviewed publications
An EU task force to assess the burden of rare diseases
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
Events
In the media
Other publications
Orphanet Belgium activity report 2023
Orphanet Belgium activities: January 2024 newsletter on Orphanet and OD4RD projects
Etude de faisabilité : développement et implémentation d'un système de controle de qualité dans les 8 centres de génétique humaine et d'un registre de tests de génétique effectués dans ces centres
Orphanet vertaling: activiteitenrapport (2021)
Orphanet vertaling: activiteitenrapport (2020)
Other sources of information
Orphanet | The portal for rare diseases and orphan drugs
Rare Disease Organization (RaDiOrg)
Rare Disease Organization (RaDiOrg)
Rare Disease Day
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