<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>13</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Suchsia Chao</style></author><author><style face="normal" font="default" size="100%">Robin Van Vreckem</style></author><author><style face="normal" font="default" size="100%">Véronique Beauloye</style></author><author><style face="normal" font="default" size="100%">Casteels,K.</style></author><author><style face="normal" font="default" size="100%">Coeckelberghs, M</style></author><author><style face="normal" font="default" size="100%">Dooms, L</style></author><author><style face="normal" font="default" size="100%">Logghe, K</style></author><author><style face="normal" font="default" size="100%">P Collin</style></author><author><style face="normal" font="default" size="100%">K Poschet</style></author><author><style face="normal" font="default" size="100%">Viviane Van Casteren</style></author><author><style face="normal" font="default" size="100%">Kris Doggen</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Pediatric diabetes centres rated parental responsibility and family support as most important determinants of HbA1c using a 17-item questionnaire: a pilot study</style></title><secondary-title><style face="normal" font="default" size="100%">ISPAD 2016</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">diabetes</style></keyword><keyword><style  face="normal" font="default" size="100%">family support</style></keyword><keyword><style  face="normal" font="default" size="100%">HbA1c</style></keyword><keyword><style  face="normal" font="default" size="100%">parental responsibility</style></keyword><keyword><style  face="normal" font="default" size="100%">pediatric</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2016</style></year><pub-dates><date><style  face="normal" font="default" size="100%">26/10/2016</style></date></pub-dates></dates><publisher><style face="normal" font="default" size="100%">ISPAD</style></publisher><pub-location><style face="normal" font="default" size="100%">Valencia, Spain</style></pub-location><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;In the last decades, HbA1c levels in young diabetic patients have decreased. However differences in metabolic control still exists between pediatric diabetes centers (PDC) [1-2].&lt;/p&gt;

&lt;p&gt;Few studies have been undertaken to explain the between-center HbA1c differences. Nevertheless we know that the metabolic control is not only dependent on the treatment prescribed but also on other factors such as biological, socio-demographic and psychosocial factors which are beyond the control of care providers and may be different between centers [3].&lt;/p&gt;

&lt;p&gt;Thus a &quot;simple&quot; comparison of HbA1c does not reflect the real differences of the quality of care given by different centers. In order to have a proper comparison, consideration must be taken for those external factors’ impact on HbA1c levels (i.e. risk-adjustment).&lt;/p&gt;

&lt;p&gt;Based on a pilot project, we wanted to identify psychosocial factors of which PDCs thought that they can positively or negatively influence the level of HbA1c in type 1 diabetes during childhood and adolescence. The factors that PDCs scored highly are potential factors which should be corrected for when mean HbA1c is compared between centers.&lt;/p&gt;

&lt;p&gt;High parental responsability and family support were scored as the most important contributing factors for EH. - A wider set of factors scored highly with regard to PH. But parental responsibility and family support remained among the highest ranking contributors, together with adolescence. - When a known risk factor for PH was present (e.g. adolescence), PDCs also scored this factor highly. - A qualitative analysis of free-text reasons for EH and PH provided information on how to improve the questionnaire for future studies (items on motivation and comorbidities). - There is evidence that due to the relatively low participation rate, the results may not be representative for all Belgian patients.&lt;/p&gt;
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