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goldberg, christophe

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Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

Jorge Alberto Diaz Manera; Celine Dogan; Rasha El Sherif; Barbara Fossati; Caroline Graham; James Hilbert; Kristinia Kastreva; En Kimura; Lawrence Korngut; Anna Kostera-Pruszczyk; Christopher Lindberg ...

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