Résultats de la recherche - 9 results

Rapport annuel- registre belge des maladies neuromusculaires 2015

particularity of a registry dedicated to neuromuscular disorders (compared to other health care registries) is that the patients’ population is heterogeneous. Neuromuscular disorders comprise indeed different ...

How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?

ACTIVLIM, a measure of activity limitations, when it is used in daily practice in a large nationwide representative cohort of patients with neuromuscular diseases. A cohort of 2986 patients was assessed at ...

Belgisch register van neuromusculaire aandoeningen (BNMDR) 2014 | Resultaten en trends sinds 2010

Keywords: BNMDR neuromusculaire ziekten Register Abstract: Het Belgian NeuroMuscular Disease Registry (BNMDR) is in het leven geroepen op initiatief van het Rijksinstituut voor Ziekte- en ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010

identified in the data for the past five years, from 2010 to 2014. The data is entered into a web application by the specialists of the seven neuromuscular disease reference centres. The data gathered are ...

Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).

living in Belgium may be included in the yearly updated Registry. Basic core data is harvested through a newly designed web application by the six accredited neuromuscular reference centres. In 2010, 3,424 ...

The TREAT-NMD DMD Global Database: analysis of more than 7,000 Duchenne muscular dystrophy mutations

Databases Development Diagnostics disease Diseases Duchenne muscular dystrophy electronic Frequency Genetic Genetic Therapy global im Institute IS journal Medicine Muscular Dystrophies Muscular dystrophy ...

Belgisch register van neuromusculaire aandoeningen (BNMDR) 2013 | Resultaten en trends sinds 2010

Keywords: BNMDR neuromusculaire ziekten Register Abstract: Het Belgian NeuroMuscular Disease Registry (BNMDR) is in het leven geroepen op initiatief van het RIZIV en ligt in de lijn van de ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010

the data over the last four years, from 2010 to 2013. The data is entered into the web application by the specialists of the six neuromuscular disease reference centres. The data gathered are ...

The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia

Institute IS journal Medicine Muscular Dystrophies Muscular dystrophy national Network Neuromuscular disease Neuromuscular Diseases ON organization outcome outcomes Patient Patient registry patients ...

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