Résultats de la recherche - 4 results
Rapport annuel- registre belge des maladies neuromusculaires 2015
are degenerative, and sometimes result in death in the short or in the long term. Some of those diseases occur during the childhood, and others occur during the adulthood. It is thus difficult to give ...
How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?
ACTIVLIM, a measure of activity limitations, when it is used in daily practice in a large nationwide representative cohort of patients with neuromuscular diseases. A cohort of 2986 patients was assessed at ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
aim to collect valuable epidemiological data, the registry targets to gather high quality data, that the sample to be representative of the population and that it be complete. The past 5 years of ...
The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010
still persists between the study population and the target population. However, since its inception, the BNMDR continues each year to improve data quality and the completeness of the registry and to track ...