Résultats de la recherche - 117 results

Annual Report Belgian Cystic Fibrosis Registry 2018

of the registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends.     Since its ...

Belgian neuromuscular diseases registry, information brochure for patients, 2020

neuromuscular diseases registry BNMDR brochure patients Abstract: Neuromuscular diseases are rare diseases but are affecting more than 250 000 people in Europe. Together we can make a difference. Join us! Health ...

Collaborative data collection by TREAT-NMD Registries to support post-marketing surveillance in Spinal Muscular Atrophy

Publication Type: Scientific poster, presentation or proceeding Authors: Miriam Rodrigues; JoAnne Bullivant; Victoria Hodgkinson; TREAT-NMD Registry Curators; Marlène Jagut; Volker Straub; Nathalie ...

Annual Report Belgian Cystic Fibrosis Registry 2017

registry data will provide readers with information on various aspects of CF and continue to provide an important tool for monitoring the patient’s quality of care and trends. Since its establishment in ...

The Belgian Cystic Fibrosis Registry- Facts and highlights 2017

https://www.sciensano.be/en/biblio/belgian-cystic-fibrosis-registry-facts-and-hi… File:  Version:  Published Full text access:  Public Access Full text language:  English Category:  F21 FOS Classification:  3.02 Clinical medicine ...

Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together

Guillaume Bassez; Hannah Murray; Helen Walker; Craig Campbell; Myotonic Dystrophy TREAT-NMD Working Group Source: IDMC12, IDMC, Gothenburg, Sweden (2019) Keywords: Belgium neuromusculars diseases registry ...

The EMPCAN study: protocol of a population-based cohort study on the evolution of the socio-economic position of workers with cancer

socio-professional support. Methods: We requested data from the Belgian Cancer Registry and the Crossroad Bank for Social Security. We included all socially insured Belgian workers diagnosed between 2004 and 2011 with ...

Cervical morbidity in Alsace, France: results from a regional organized cervical cancer screening program.

Volume 28, Issue 1 (2019) Keywords: Adult Early Detection of Cancer Female France Humans middle aged morbidity Papillomavirus Vaccines REGISTRIES Uterine Cervical Neoplasms Abstract: In 1994, a pilot ...

Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

1 (2018) Keywords: Clinical trials Myotonic dystrophy REGISTRIES Trial readiness Abstract: BACKGROUND: Myotonic Dystrophy is the most common form of muscular dystrophy in adults, affecting an estimated 10 ...

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