Résultats de la recherche - 3 results
An EU task force to assess the burden of rare diseases
Publication Type: Peer reviewed scientific article Authors: Pavel Kolkhir; Diana Alecsandra Grad; Periklis Charalampous; Claudia Cruz Oliveira; Enkeleint A Mechili; Brigid Unim; David A Pearce; Marcus Maurer; Brecht Devleesschauwer; Juanita Haagsma Source ...
Annual report Belgian Cystic Fibrosis Registry 2016
Fibrosis Abstract: This report presents the data collected in 2016. It is our hope that the analysis of the registry data will provide readers with information on various aspects of CF and continue to ...
The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease
that requires regular intravenous injections of clotting factor (CF) concentrates. This study sought to estimate the health and economic burden of haemophilia in Belgium. This is the first study of its ...