Résultats de la recherche - 3 results

entre la population étudiée et la population cible. Néanmoins, depuis sa création, le BNMDR continue chaque année à améliorer la qualité des données et l’exhaustivité du registre et permet de suivre ...

still persists between the study population and the target population. However, since its inception, the BNMDR continues each year to improve data quality and the completeness of the registry and to track ...

patients from 31 different countries. Here, we describe how the TREAT- NMD national patient registries for DMD were established. We look at their continued growth and assess how successful they have been at ...