Résultats de la recherche - 6 results

Rapport annuel registre belge des maladies neuromusculaires (BNMDR) 2015

collecter certaines données directement sur une tablette qui serait mise à disposition du patient dans la salle d’attente pourrait contribuer à diminuer la charge de travail des data managers au sein des ...

Rapport annuel- registre belge des maladies neuromusculaires 2015

a general overview of such a heterogeneous group of patients. General demographic data show a slightly higher number of males than females (N = 2610 versus N = 2043). The patients’ recruitment is currently ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2014 | Results and Trends since 2010

research (clinical, epidemiological, and etiological) in the field of neuromuscular diseases” [4,5]. This report provides an overview of the data harvested for the year 2014 and outlines the trends ...

Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).

Retrospective Studies Abstract: The Belgian Neuromuscular Disease Registry, commissioned in 2008, aims to collect data to improve knowledge on neuromuscular diseases and enhance quality health services for ...

The TREAT-NMD DMD Global Database: analysis of more than 7,000 Duchenne muscular dystrophy mutations

Verschuuren,J.; Aartsma-Rus,A.; Beroud,C.; Lochmuller,H. Source: Hum.Mutat., Volume 36, Issue 4, Number 402, p.395- 402 (2015) Keywords: a ALL an analysi analysis article Benefit care Clinical data Database ...

The Belgian Neuromuscular Disease Registry (BNMDR) 2013 | Results and Trends since 2010

research (clinical, epidemiological, and aetiological) in the field of neuromuscular diseases”. This report provides an overview of the data harvested for the year 2013 and outlines the trend identified in ...

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