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Orphanet Belgium activiteitenrapport 2017-2019
D/2020/14.440/98 Keywords: Database Orphanet Rare diseases Health Topics: Orphan diseases Weesziekten Maladies orphelines Surveillance de la santé et des maladies Ziekten en gezondheid in kaart brengen Service: ...
Orphanet Belgium activity report 2017-2019
Number: D/2020/14.440/99 Keywords: Rare diseases & Orphanet & database Health Topics: Orphan diseases Weesziekten Maladies orphelines Service: Épidémiologie et santé publique Epidemiologie en ...
Towards a central registry for rare disease patients in Belgium
implementation improve incidence Indicator Indicators IS IT LEVEL measure measures methodology Monitoring need needs Nomenclature ON orphan Orphanet Patient Patient Care patients Planning prevalence public Quality ...