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Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

Rodrigues, Miriam; Roxburgh, Richard; Schoser, Benedikt; Segovia, Sonia; Shatillo, Andriy; Thiele, Simone; Tournev, Ivailo; van Engelen, Baziel; Vohanka, Stanislav; Hanns, Lochmüller Source: Orphanet J Rare ...

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