Résultats de la recherche - 2 results
Rapport annuel- registre belge des maladies neuromusculaires 2015
present report. The registry also collects specific data relative to the international “ TREAT- NMD ” network, for two defined groups of diseases: Duchenne and Becker muscular dystrophies, and spinal muscular ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
neuromuscular disease patients. This paper presents a clear outline of the strategy to launch a global national registry. All patients diagnosed with one of the predefined 62 neuromuscular disease groups and ...