Résultats de la recherche - 2 results

Rapport annuel- registre belge des maladies neuromusculaires 2015

present report. The registry also collects specific data relative to the international “ TREAT- NMD ” network, for two defined groups of diseases: Duchenne and Becker muscular dystrophies, and spinal muscular ...

Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).

neuromuscular disease patients. This paper presents a clear outline of the strategy to launch a global national registry. All patients diagnosed with one of the predefined 62 neuromuscular disease groups and ...

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