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Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.

dataset for patient registries in myotonic dystrophy. Eight years after this workshop, we surveyed 22 registries collecting information on myotonic dystrophy patients to assess the proliferation and utility ...

Bluetongue, Schmallenberg- what is next? Culicoides-borne viral diseases in the 21st Century.

Ibáñez-Justicia, Adolfo; Kampen, Helge; Kormelink, Richard Jm; Losson, Bertrand; van der Poel, Wim Hm; Nick De Regge; van Rijn, Piet A; Sanders, Christopher; Schaffner, Francis; Sloet van Oldruitenborgh-Oosterbaan, ...

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