<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>17</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Miranda, Rose</style></author><author><style face="normal" font="default" size="100%">Penders, Yolanda W H</style></author><author><style face="normal" font="default" size="100%">Tinne Smets</style></author><author><style face="normal" font="default" size="100%">Deliens, Luc</style></author><author><style face="normal" font="default" size="100%">Miccinesi, Guido</style></author><author><style face="normal" font="default" size="100%">Tomas Vega Alonso</style></author><author><style face="normal" font="default" size="100%">S Moreels</style></author><author><style face="normal" font="default" size="100%">Van den Block, Lieve</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">Quality of primary palliative care for older people with mild and severe dementia: an international mortality follow-back study using quality indicators.</style></title><secondary-title><style face="normal" font="default" size="100%">Age Ageing</style></secondary-title></titles><keywords><keyword><style  face="normal" font="default" size="100%">Dementia</style></keyword><keyword><style  face="normal" font="default" size="100%">General practice</style></keyword><keyword><style  face="normal" font="default" size="100%">older people</style></keyword><keyword><style  face="normal" font="default" size="100%">Palliative Care</style></keyword><keyword><style  face="normal" font="default" size="100%">primary palliative care</style></keyword><keyword><style  face="normal" font="default" size="100%">quality indicators</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2018</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2018 Nov 01</style></date></pub-dates></dates><volume><style face="normal" font="default" size="100%">47</style></volume><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;&lt;b&gt;Background: &lt;/b&gt;measuring the quality of primary palliative care for older people with dementia in different countries is important to identify areas where improvements can be made.&lt;/p&gt;

&lt;p&gt;&lt;b&gt;Objective: &lt;/b&gt;using quality indicators (QIs), we systematically investigated the overall quality of primary palliative care for older people with dementia in three different countries.&lt;/p&gt;

&lt;p&gt;&lt;b&gt;Design/setting: &lt;/b&gt;a mortality follow-back survey through nation- and region-wide representative Sentinel Networks of General Practitioners (GPs) in Belgium, Italy and Spain. GPs registered all patient deaths in their practice. We applied a set of nine QIs developed through literature review and expert consensus.&lt;/p&gt;

&lt;p&gt;&lt;b&gt;Subjects: &lt;/b&gt;patients aged 65 or older, who died non-suddenly with mild or severe dementia as judged by GPs (n = 874).&lt;/p&gt;

&lt;p&gt;&lt;b&gt;Results: &lt;/b&gt;findings showed significantly different QI scores between Belgium and Italy for regular pain measurement (mild dementia: BE = 44%, IT = 12%, SP = 50% | severe dementia: BE = 41%, IT = 9%, SP = 47%), acceptance of approaching death (mild: BE = 59%, IT = 48%, SP = 33% | severe: BE = 41%, IT = 21%, SP = 20%), patient-GP communication about illness (mild: BE = 42%, IT = 6%, SP = 20%) and involvement of specialised palliative services (mild: BE = 60%, IT = 20%, SP = 77%). The scores in Belgium differed from Italy and Spain for patient-GP communication about medical treatments (mild: BE = 34%, IT = 12%, SP = 4%) and repeated multidisciplinary consultations (mild: BE = 39%, IT = 5%, SP = 8% | severe: BE = 36%, IT = 10%, SP = 8%). The scores for relative-GP communication, patient death outside hospitals and bereavement counselling did not differ between countries.&lt;/p&gt;

&lt;p&gt;&lt;b&gt;Conclusion: &lt;/b&gt;while the countries studied differed considerably in the overall quality of primary palliative care, they have similarities in room for improvement, in particular, pain measurement and prevention of avoidable hospitalisations.&lt;/p&gt;
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