<?xml version="1.0" encoding="UTF-8"?><xml><records><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>27</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Pascal Derycke</style></author><author><style face="normal" font="default" size="100%">Truls Korsgaard</style></author><author><style face="normal" font="default" size="100%">Charles-Andrew Vande Catsyne</style></author><author><style face="normal" font="default" size="100%">Han Aage Huru</style></author><author><style face="normal" font="default" size="100%">Nienke Schutte</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">HealthDCAT-AP – A DCAT Application Profile for the description of health datasets “Recommendations on further development and deployment for possible EU-wide uptake”</style></title></titles><keywords><keyword><style  face="normal" font="default" size="100%">datasets</style></keyword><keyword><style  face="normal" font="default" size="100%">DCAT-AP</style></keyword><keyword><style  face="normal" font="default" size="100%">Healthdata@EU Pilot</style></keyword><keyword><style  face="normal" font="default" size="100%">HealthDCAT-AP</style></keyword><keyword><style  face="normal" font="default" size="100%">interoperability</style></keyword><keyword><style  face="normal" font="default" size="100%">metadata</style></keyword><keyword><style  face="normal" font="default" size="100%">RDF</style></keyword></keywords><dates><year><style  face="normal" font="default" size="100%">2024</style></year><pub-dates><date><style  face="normal" font="default" size="100%">2024</style></date></pub-dates></dates><publisher><style face="normal" font="default" size="100%">HealthData@EU pilot project</style></publisher><pub-location><style face="normal" font="default" size="100%">EU</style></pub-location><pages><style face="normal" font="default" size="100%">100</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;This document presents recommendations for the further development and potential EU-wide adoption of HealthDCAT-AP, an extension of the DCAT Application Profile for dataset catalogues in Europe1. HealthDCAT-AP is specifically designed to describe health datasets and dataset access services, ensuring they are consistently represented and easily discoverable across various platforms.&lt;br&gt;
The principal objective of the Health Data Catalog Application Profile (HealthDCAT-AP) is to establish a standardised, interoperable metadata schema tailored to the health domain. This schema is intended to facilitate the discovery, sharing, and reuse of health datasets across the European Union. By aligning with the broader DCAT-AP (Data Catalog Vocabulary Application Profile) standard, HealthDCAT-AP ensures that health-related datasets are uniformly described, promoting interoperability and enabling seamless data exchange among researchers, public health institutions, policymakers, and other stakeholders.&lt;br&gt;
HealthDCAT-AP introduced specific extensions to the DCAT-AP model to meet the unique requirements of the health sector. This standardisation is crucial for the European Health Data Space (EHDS) framework, enabling effective health data sharing across Europe. By enhancing the accessibility and availability of health data, HealthDCAT-AP plays an essential role in helping the EHDS achieve its objectives of improving public health outcomes, advancing research, and informing policy-making across the EU, all while upholding stringent data protection and privacy standards.&lt;br&gt;
This document is the second and final deliverable of Work Package 6 of the EHDS2 pilot project consortium. The first deliverable, the draft specification of HealthDCAT-AP, is available at HealthDCAT-AP Draft Specification. The development of HealthDCAT-AP will continue transparently and publicly within the framework of the Second Joint Action Towards the European Health Data Space (TEHDAS2). TEHDAS2 lays the groundwork for the harmonised implementation of secondary health data use within the European Health Data Space (EHDS), advancing the EU’s vision of a connected and interoperable health data ecosystem.&lt;/p&gt;
</style></abstract><accession-num><style face="normal" font="default" size="100%">--</style></accession-num></record><record><source-app name="Biblio" version="7.x">Drupal-Biblio</source-app><ref-type>27</ref-type><contributors><authors><author><style face="normal" font="default" size="100%">Pascal Derycke</style></author><author><style face="normal" font="default" size="100%">Charles-Andrew Vande Catsyne</style></author><author><style face="normal" font="default" size="100%">Truls Korsgaard</style></author><author><style face="normal" font="default" size="100%">Hans Aage Huru</style></author></authors></contributors><titles><title><style face="normal" font="default" size="100%">HealthDCAT-AP Specifications</style></title></titles><keywords><keyword><style  face="normal" font="default" size="100%">datasets</style></keyword><keyword><style  face="normal" font="default" size="100%">DCAT-AP</style></keyword><keyword><style  face="normal" font="default" size="100%">Healthdata@EU Pilot</style></keyword><keyword><style  face="normal" font="default" size="100%">HealthDCAT-AP</style></keyword><keyword><style  face="normal" font="default" size="100%">metadata</style></keyword><keyword><style  face="normal" font="default" size="100%">RDF</style></keyword></keywords><dates><pub-dates><date><style  face="normal" font="default" size="100%">22/12/2023</style></date></pub-dates></dates><publisher><style face="normal" font="default" size="100%">Pascal Derycke</style></publisher><pub-location><style face="normal" font="default" size="100%">Github</style></pub-location><pages><style face="normal" font="default" size="100%">60</style></pages><language><style face="normal" font="default" size="100%">eng</style></language><abstract><style face="normal" font="default" size="100%">&lt;p&gt;HealthDCAT-AP is a health-related extension of the DCAT application profile for sharing information about Catalogues containing Datasets and Data Services descriptions in Europe (DCAT-AP) [DCAT-AP]. DCAT-AP is maintained by the SEMIC action, Interoperable Europe. While DCAT-AP provides a minimal common basis within Europe to share Datasets and Data Services cross-border and cross-domain, HealthDCAT-AP introduces a refined RDF vocabulary to accommodate the unique requirements of electronic health data.&lt;br&gt;
The proposal for a regulation on the European Health Data Space [EUR-Lex - PE_76_2024_INIT], aims to establish a unified framework to facilitate the sharing and exchange of electronic health data across Europe. It aligns with European standards for data privacy and security and specifically addresses the challenges and obstacles for the secondary use of health data—data repurposed from its original collection for research, innovation, or policymaking – in Europe by outlining specific rules and processes for data availability, usage conditions, and supporting these efforts through a common European infrastructure, healthdata@EU. Key articles within the regulation proposal detail operational mandates: Article 51 identifies the types of health data that must be made available for secondary use; Article 79 tasks the European Commission to develop an EU dataset catalogue, federating the catalogues of Member states and other authorised participants into HealthData@EU; and Article 77 commissions health data access bodies to provide metadata about available datasets, detailing their source, scope, main characteristics, data nature, and access conditions. The development of a healthDCAT application profile, as an extension of the DCAT application profile, aims to standardise health metadata within the scope of EHDS, fostering greater interoperability, findability and accessibility of electronic health data across the EU.&lt;/p&gt;
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