Healthy Data, an online citizen consultation about health data reuse – intermediate report

Last updated on 17-2-2023 by Wesley Van Dessel

Public Access

Published

Sci. report, recommendat°, guidance doc., directive, monograph

Engels

SCIENSANO

Article written during project(s) : 

Samenvatting:

Introduction The present report is an overview of participants’ opinions gathered through a pilot public econsultation conducted between December 2021 and May 2022, primarily in France, Belgium and the UK, in order to develop citizen inspired recommendations regarding the reuse of their data and their role in this governance. The Healthy Data online consultation platform aimed to inform citizens about health data reuse, deliberate together with citizens about an ethical, legal and societal framework and produce recommendations for the development of the European Health Data Space. Met…

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