- Bedoelde u
- el cherif, rash
Zoekresultaten - 2 results
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Wenninger; Sonia Segovia; Jordi Diaz-Maera; Rasha El Sherif; Hiroto Takada; Kristina Kastreva; Ivailo Tournev; Stanislav Vohanka; Radim Mazanec; Ben Porter; Chiara Marini Bettolo; Vidosava Rakocevic ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Jorge Alberto Diaz Manera; Celine Dogan; Rasha El Sherif; Barbara Fossati; Caroline Graham; James Hilbert; Kristinia Kastreva; En Kimura; Lawrence Korngut; Anna Kostera-Pruszczyk; Christopher Lindberg; ...