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Zoekresultaten - 2 results
Affiliation to the Treat-NMD Consortium Using an Agreed Minimum Dataset Allows Small Registries and Large Registries to Collaborate Together
Wenninger; Sonia Segovia; Jordi Diaz-Maera; Rasha El Sherif; Hiroto Takada; Kristina Kastreva; Ivailo Tournev; Stanislav Vohanka; Radim Mazanec; Ben Porter; Chiara Marini Bettolo; Vidosava Rakocevic ...
Eight years after an international workshop on myotonic dystrophy patient registries: case study of a global collaboration for a rare disease.
Bjorn Lindvall; Elizabeth Luebbe; Anna Lusakowska; Radim Mazanec; Giovanni Meola; Lianna Orlando; Masanori P Takahashi; Stojan Peric; Jack Puymirat; Rakocevic-Stojanovic, Vidosava; Miriam Rodrigues; ...