Zoekresultaten - 2 results

An EU task force to assess the burden of rare diseases

Marcus Maurer; Brecht Devleesschauwer; Juanita Haagsma Source: Nat Med, Volume 29, Issue 3, Number 517 (2023) Keywords: Advisory Committees European Union Humans Rare diseases Health Topics:  Burden of ...

The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease

calculation were derived using generic quality-of-life tools such as SF-6D from the SF-36 (36-item Short-Form Health Survey; for adults) and KINDL (generic quality-of-life instrument; for children) compared to ...

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