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How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases?
publication. It showed a good reliability (R = 0.95), an appropriate targeting for 87% of the sample and an excellent invariance across age, gender, language and time. Despite some variations in the item ...
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
p.97-104 (2015) Keywords: Adult Belgium cross-sectional studies Female Humans Male middle aged Neuromuscular Diseases Online Systems prevalence Rare diseases REGISTRIES Retrospective Studies Abstract: The ...