Zoekresultaten - 2 results
Early stages of building a rare disease registry, methods and 2010 data from the Belgian Neuromuscular Disease Registry (BNMDR).
living in Belgium may be included in the yearly updated Registry. Basic core data is harvested through a newly designed web application by the six accredited neuromuscular reference centres. In 2010, 3,424 ...
The TREAT-NMD Duchenne muscular dystrophy registries: conception, design, and utilization by industry and academia
article at Clinical Countries delivery Design Development disease Diseases Duchenne muscular dystrophy Dystrophin electronic growth implementation Increase Individuals Industries Industry INFORMATION ...